Ghost Boy: My Miraculous Escape from a Life Locked Inside My Own Body cover
Book

Ghost Boy: My Miraculous Escape from a Life Locked Inside My Own Body

by Martin Pistorius

2011•EN
About the book

In January 1988, twelve-year-old Martin Pistorius fell ill with an undiagnosed brain infection that left him in a vegetative state. For years, he lived as a "ghost," regaining consciousness around age sixteen while remaining physically paralyzed and incapable of speech. His memoir documents over a decade of being a silent observer to his own life, enduring neglect in care centers and overhearing his mother express a wish for his death. The narrative tracks his eventual breakthroughs using computer-aided communication and his physical rehabilitation.

Readers interested in clinical neurology and the ethics of long-term care find this account valuable for its perspective on "locked-in" syndrome. The text serves those seeking a detailed look at the internal psychology of non-verbal patients and the technical processes of speech-generating devices. A reader finishes the book with a technical understanding of how assistive technology reconstructs identity and a specific awareness of the cognitive disconnect possible in patients diagnosed as minimally conscious.

Reading profile

Inward-looking, contemplative and clear-cut; an easy read.

Best for readers like The Escapist Adventurer. Which reader are you?

Details
Published
2011
Language
EN

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