In this memoir, Alice Wong uses a collage of essays, graphics, medical transcripts, and interviews to document her life as a disabled activist. Living with spinal muscular atrophy, Wong details her reliance on a ventilator and her advocacy for home-based care services. She describes the history of the Disability Visibility Project and her efforts to document the voices of those often omitted from historical archives. The narrative tracks her upbringing in Indiana and her eventual work in San Francisco, focusing on the material realities of accessibility, the politics of eating, and the labor required to navigate bureaucratic healthcare systems.
Readers interested in the intersection of civil rights and healthcare policy will find a technical and personal look at how systemic barriers function. This book provides a blueprint for community organizing and digital activism, specifically for those navigating high-risk medical status. You will walk away with a clear understanding of the social model of disability and how legislative choices impact the daily survival of people with complex needs. It serves as a practical record of how to build mutual aid networks and document marginalized history in real time.
- Published
- 2022
- Language
- EN
